The CEO of our Chapter, Rhonda Speigel, is in Washington, D.C. for the Advocacy Forum.
On-the-scene highlights and images are available here.
Key legislation we are leading
We are currently working to enact two key federal legislative priorities:
Expand diagnosis and care planning: The HOPE for Alzheimer’s Act – (S. 738/H.R. 1386)
To provide better medical care and outcomes for individuals with Alzheimer’s and other dementias, possible dementia must first be detected, the disease must then be diagnosed, care must be planned, and the diagnosis must be noted in the patient’s medical record. Studies also suggest that early diagnosis and care planning are keys to the improved long-term health of caregivers. The Health Outcomes, Planning, and Education (HOPE) for Alzheimer’s Act would expand diagnosis of Alzheimer’s disease, provide information on medical and non-medical services for newly-diagnosed patients and their families, and require that a diagnosis be noted in a patient’s medical record. Learn more at alz.org/hopeact.
Implement the National Alzheimer’s Project Act
Alzheimer’s disease, creating an enormous strain on the health care system, families, and the federal budget. Recognizing this growing crisis, Congress unanimously passed and President Obama signed into law the National Alzheimer’s Project Act (P.L. 111-375). Now, the Secretary of Health and Human Services must thoroughly and expeditiously implement this law by creating a plan to comprehensively address the federal government’s efforts on Alzheimer’s research, care, institutional services, and home- and community-based programs. Learn more at alz.org/napa.
Actor, Alzheimer’s Champion and longtime advocate David Hyde Pierce, honorary chair of the 2013 Forum, welcomed attendees, receiving a standing ovation when introduced. He set a great tone.
“I love the word ‘advocate’ because the Spanish word for ‘advocate’ is ‘abogado,’ and ‘abogado’ sounds like ‘avocado.’ Avocados are like Alzheimer’s advocates — because they are irresistible and they have big nuts.”
Once the laughter and applause died down, he added, “If you’re going to come to Washington in the middle of sequestration and ask for funding, you better have both.”
- HOPE for Alzheimer’s Act (thedementiaqueen.com)
- Be an Advocate: It’s So Easy To Help (alzjourney.com)
- Utah couple petitioning Congress for help with Alzheimer’s disease (ksl.com)
Find out more about becoming an Advocate.